Inflammatory Bowel Disease
Inflammatory Bowel Disease, or IBD, is not a single disease but rather refers to two related but distinct diseases, Crohn’s and ulcerative colitis
Both types of IBD involve chronic inflammation of all or part of the digestive tract and both can cause a lot of different symptoms ranging from fatigue and crampiness, to severe diarrhea and rectal (rear-end) bleeding.
These symptoms can be difficult to deal with physically but also often lead to a lot of uncomfortable emotions such as shame and embarrassment. It’s really important to address both the physical and the emotional when learning to manage IBD.
The Best of the Rest
|IBD Knowledge Navigator
||This is a helpful site which lets you stream-line your search to find information that's important to you.
||This whole site is full of good resources but this IBD Navigation tool made it particularly useful|
|The GoHere Washroom Access Initiative
||"The GoHere Washroom Access Initiative is an innovative program that increases washroom access for people living with Crohn’s disease, ulcerative colitis, or other medical conditions related to incontinence."
||A great campaign from Crohn’s and Colitis Canada. Love that you can download an app to help you locate and access the closest public washroom anywhere in Canada.|
|Crohn's & Colitis Community
||The Crohn's and Colitis Foundation of America describes this resource as "A place to share your thoughts about Inflammatory Bowel Disease"
||Having a strong social network and belonging to a community can really improve quality of life. This is a fantastic site where you can share your personal story, read about other patients' experiences with IBD, ask questions or join a support group.|
|Michael Seres - Patient to Patient
||Michael was diagnosed with Crohn's Disease at age twelve and has since had over 20 surgeries. He's a bit of a social media guru, blogging, vlogging, tweeting about his own patient experiences while also creating forums to connect the IBD community.
||Michael gets it. His honest, open and insightful posts explain things better than most medical hot-shots could and he's clearly devoted to bringing patients and their families together. Plus, anyone who can make stoma bags seem fun must be something special.|